This week has been a roller coaster for me. A huge roller coaster. Shoot, who am I kidding. My life has been a huge roller coaster for the past month. Let’s recap, shall we? My son’s car literally somewhat explodes while he is driving it, in front of me. (Just the transmission, but when you are a mom, heart attack.) The company that I worked for, loved and adored, was bought out. My baby turned eleven. We announced the podcast.
And this morning, I snapped at my kids, and I sat in my car and cried for about ten minutes before I went into my job.
What’s wrong? It hurts to hold the steering wheel. To type is so difficult sometimes. I hardly slept at all last night. Sometimes I get so cold I feel like I am laying in the middle of a snowstorm. Then two hours later, I am pretty sure I am frying under a saguaro in the middle of the Arizona Desert. I have fallen in public because my feet hurt. I have crawled to the bathroom. I have turned on the water with my elbow to wash my hands because they feel locked up. So what’s wrong? I have Lupus. SLE Lupus (Systemic lupus erythematosus) and Hashimoto’s Thyroiditis.
So basically? My immune system attacks my own tissues. So, I kick my own butt. Get the title? Clever, I know.
I’m private. I don’t put my business on front street. But this morning, after my ten minute pity party, I decided to pull it together, and maybe I can help somebody with this. Just so they know they aren’t by themselves.
Some days, I have no idea how I am actually going to physcially walk down to the car. But somedays, I get on my treadmill and run three miles. Sometimes, I can’t even hold hands. Somedays, I can hold hands and play a game of mercy along with it. Somedays my skin itches so bad, I cry because it hurts to touch it, but it itches. So it’s like having a bad itch that you can’t scratch. Somedays, my skin is perfect without a flaw. Somedays, when I cry, my tears feel like acid running down my cheeks. Somedays are so amazing that I laugh until I cry, and I love that. Somedays I am afraid that this disease will kill me. Somedays, I feel like I can live forever.
What triggers me? Changes in my thyroid meds (which happened this week, go figure). Excitement, nervousness, fear. Near death experiences – and by that, I mean that feeling you get when a tractor trailer comes over three lanes and about side swipes you? Yeah, that has literally triggered a flare.
But, I’m lucky. I have such a great support system. My friends, my family, my kids, my sweetie – everyone. But what makes me even luckier is this – A couple weeks or so ago, when the whole merger was going through, I was alot worse than I am today. I was laying in my bed, and I finally fell asleep. When I woke up, my hand was being held, and I was being prayed for. Folks, that’s powerful. Tears running down his face, praying…
I laid there and watched him, cause he didn’t know I had awoken. And shoot, I wondered if I was about see something… LOL. But all I saw, was a person who was broken for another person. The next morning, my oldest son who rides to work with me, picked my hand up off the gear shift, and kissed it. And he said he hopes I feel better. I was alot better then, but he could look at my hands and see it.
I have been accused of having a perfect life. My life isn’t perfect by any means. My everyday is a struggle. But everyday, I choose my path. I can choose gratitude, or grievance. I can choose pain, or passion. I can choose fighting, or freedom. And not everyday I make the right choice. Somedays, I lay in my bed and cry. Somedays, I cry before I walk into work. Somedays, I wonder if I will ever make it the next day.
But somedays, aren’t most days. Most days, I choose wisely. I get up and do yoga. I eat healthy. I do my hair and makeup. I take my medicine like I should, gluten is a no-no, and I listen to others with inflammatory issues.
But more importantly, I choose to love like Jesus loves. I choose gratitude because I am so loved, so honored, and so blessed. I choose forgiveness, so I have the freedom to live a passion filled life. I choose grace, because so many people have real issues in their lives, and to honest, I have medical insurance, a great job, and so many people who love me. What more can someone want?
So this is my story. My truth. So yeah, I might not look sick today. My eyelashes are perfect, brows even better. But that doesn’t mean that just because people look great, that they don’t have troubles, too. So I ask for you prayers – if you happen to think about it. For me, the people who help and care about me, my babies, and my co-workers. I have never missed a day of work for this stuff – I don’t plan to now.
So guys, there ya have it. And thanks for all the love and support on the upcoming Podcast! WE ARE SO EXCITED! Anyway, Love Fully. Live Fully. Shine on.
As a patient of Lupus also, I know the struggles. You do so great! I would have never known. Ginger root helps me!
It is common to have Lupus and Hashimoto’s. And yes, young lady, I am still keeping track of you. I haven’t forgotten. Suruti and I will be home in June. We got her in a Spinal Rehab facility in Lake Nona. Rachel, will be flying over to help us get her back with the boys. Remember, you must eat healthy – you must exercise. You must keep excitements to the minimum. I will call Juan, today – and have him check in.
Omg! Yayayay! Thank you and I know you hadn’t! You will always be my #1 dr! We are praying for you all the time. Your buddy is always asking if we have spoken! Call me soon!